Luisa used to work in a clothing store, but now looks after Juanito full-time while her husband, Ricardo Quintín, works as a delivery driver for a local auto parts shop, earning about 2,000 pesos ($112) a week. Each journey to Mexico City costs about 800 pesos ($45) in buses and taxis to and from the shelter, and then back home again.
Much of what Ricardo earns goes towards this transport, food, nappies and anything else Juanito might need, as well as utilities, groceries and any emergencies. Though they live rent-free in a one-room house owned by Luisa’s parents, money is always tight.
Although Luisa can stay at the shelter for free, longer stays bring additional costs – taxis when hospital schedules do not align with the AMANC centre’s minibus runs or when she is held up waiting for hours in overcrowded facilities, food during long visits, and necessities like nappies, baby formula and medication, all of which cost more in the capital.
“I try not to spend too much so the money lasts,” she says. “I just eat simply.”
When her husband accompanies her to appointments to support her, he sometimes misses work, reducing the family’s income further.
“I don’t like to ask my parents for money,” Luisa says quietly. “They already help us with a place to live.”
The surgery Juanito will eventually need – the removal of his right eye – will be covered by Mexico’s public health system, as is much of his ongoing care. Private treatment is far beyond the family’s means, leaving them reliant on a system marked by long waiting times and complex administrative procedures.
After a paediatrician in her village urged her to seek further tests in Mexico City, Luisa waited several months for her son’s first appointment with a specialist in the capital. During those early visits, before being admitted to the AMANC shelter – which accepts patients through doctor referrals – she and Juanito stayed in a hotel near the hospital.
It was her first time in the city. Coming from a small rural village, she says she felt overwhelmed by its size – the noise, the traffic, the crowds – and was afraid to go outside. Most days, she remained in the room with her baby, leaving only when she had to buy food, supplies or make the journey to the hospital.
“I felt very alone, and everything was more expensive,” she says. “I didn’t know how I was going to manage.”
To make the money last, she skipped meals, focusing on what her son needed, something she and her husband still do in Mexico City when things are tight.
After learning about her financial situation, a doctor referred her to the centre. “It helped me a lot,” Luisa says. “I don’t think we could manage otherwise.”
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